Cleft New Zealand is the ‘come-to’ place for everyone touched by the condition of cleft. You may be a parent of a newborn, a teenager born with cleft or an adult who has a wealth of experience to share. You may be a professional working with families who really wants to make a difference, or you may just want to learn more.

We have the contacts, the knowledge and, most importantly, the passion to support you, no matter who you are and where you are at. Sure it is serious facing the challenges every step of the way, but let’s do it together with positivity and a light heart.

We work closely with health and educator partners, international cleft organisations, and individuals all around New Zealand. We believe in facing our fears with positivity and hope. Our work supports individuals working together for a shared vision with benefits for all.

Cleft New Zealand is a non government funded, not-for-profit, Incorporated Society 222784. Cleft New Zealand is registered under the Charities Commission CC21700. We are governed by a constitution, applied and audited by an Executive Board. As a membership-driven organisation, we are guided in our work by what our members require.


  • Support Parent or Support Buddy Service
  • Free breast pump hire
  • 0800 support line
  • Information – website and booklets
  • Community – the opportunity for the community to share their fears and their triumphs either online or at local support groups
  • Advocacy
  • Arm splints for all baby’s first and second repairs throughout New Zealand

To learn more, visit our website.


Child / Tamariki, Youth / Rangatahi, Adult / Pakeke

How do I access this service?

Contact us


Mon – Fri 9:00 AM – 5:00 PM

Public Holidays: Closed Labour Day (28 Oct), Auckland Anniversary (27 Jan), Waitangi Day (6 Feb), Good Friday (18 Apr), Easter Sunday (20 Apr), Easter Monday (21 Apr), ANZAC Day (25 Apr), King's Birthday (2 Jun), Matariki (20 Jun).

Languages Spoken

New Zealand Sign Language (NZSL), English, French, Māori, Samoan

Services Provided

Information & support
Pregnancy and parenting


Bay of Plenty, Canterbury, Central Auckland, Central Lakes, Dunedin - South Otago, East Auckland, Hawke's Bay, Hutt, Lakes, MidCentral, Nelson Marlborough, North Auckland, Northland, South Auckland, South Canterbury, Southland, Tairāwhiti, Taranaki, Waikato, Wairarapa, Waitaki, Wellington, West Auckland, West Coast, Whanganui

Contact Details

Postal Address

PO Box 13 385

This page was last updated at 3:45PM on January 24, 2022.